About The British Porphyria Association
The BPA is committed to advocating for, supporting and educating porphyria patients, relatives and medical professionals, so as to improve the quality of life for those living with the different types of porphyria.
We promote disease awareness and the advancement of research into new therapies.
www.porphyria.org.uk
helpline@porphyria.org.uk
The British Porphyria Association Registered charity number 1089609