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FOP Friends was established to raise money & awareness for the rare genetic condition fibrodysplasia ossificans progressiva. FOP is one of the rarest and most disabling genetic conditions known to medicine. A cure is near, but we need to keep research funded to perfect it in time for those with FOP.
FOP Friends
helen@fopfriends.com
FOP Friends Registered charity number 1147704
"Belated congratulations to the Tough Mudder team 💪💪💪 (I forgot to donate! Head like a sieve 🙄) xx"
Lynn Davis donated
£20.00 + £5.00 Gift Aid
"In loving memory of Betty Deegan a truly wonderful lady! x"
Patricia Livesley donated
£25.00 + £6.25 Gift Aid
"Christmas Gift "
Anonymous donated
£50.00 + £0.00 Gift Aid
"Thanks for the tickets to Comic Con Chaz …. We’ll do you proud ❤️❤️. "
Suz, Rob, Hope and Ellis donated
£100.00 + £25.00 Gift Aid
"In memory of a truely inspiring person and one of my dearest friends"
Jacob Becket donated
"Our hearts are broken to know you are no longer here. Be the Legend you always were, fly high, be loud. Our world was a better place for having you in it. All our love, Joe Aly Jacob & Isaac 💙🕷❤"
Lucy Brown has raised $307.85 so far
Freya's Hair cutting
Samantha Robins has raised $246.17 so far
Franke Coffee Cake Day
Rachael Docherty has raised $126.56 so far
I'm We are raising money for Rachael Docherty because Finding a cure for FOP was so important to Ena
