Lucy Brown

Freya's Hair cutting

Fundraising for FOP Friends
£244
raised
Hair cutting, 26 June 2021
FOP Friends

Verified by JustGiving

RCN 1147704
We are raising money to fund research into FOP

Story

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Freya will be having her hair cut, which she will donate to The Little Princess Trust. She would also like to try some money for her friend Ellis who has a rare condition called FOP.

Here is a link to a newspaper article about Ellis

https://www-mirror-co-uk.cdn.ampproject.org/v/s/www.mirror.co.uk/news/uk-news/boy-growing-second-skeleton-one-13168337.amp?amp_js_v=a6&_gsa=1&usqp=mq331AQHKAFQArABIA%3D%3D#aoh=16208947044630&referrer=https%3A%2F%2Fwww.google.com&_tf=From%20%251%24s&share=https%3A%2F%2Fwww.mirror.co.uk%2Fnews%2Fuk-news%2Fboy-growing-second-skeleton-one-13168337

Please take a look and thank you for your donation x 

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About the charity

FOP Friends

Verified by JustGiving

RCN 1147704
FOP Friends was established to raise money & awareness for the rare genetic condition fibrodysplasia ossificans progressiva. FOP is one of the rarest and most disabling genetic conditions known to medicine. A cure is near, but we need to keep research funded to perfect it in time for those with FOP.

Donation summary

Total raised
£243.25
Online donations
£243.25
Offline donations
£0.00

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