About Batten Disease Family Association
Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.
http://www.bdfa-uk.org.uk
fundraising@bdfa-uk.org.uk
Batten Disease Family Association Registered charity number 1205650
