About The 1p36 Family Trust
The 1p36 Family Trust, is set up to support and educate families affected by the rare chromosomal disorder, 1p36 deletion syndrome, that affects 1:5000/10,000 births, it causes developmental delays, heart conditions and seizures.
Www.1p36.co.uk
1p36familytrust@gmail.com
The 1p36 Family Trust Registered charity number 1181988