Jason Guy

Jason's Jason Aimee 2021

Fundraising for The 1p36 Family Trust
£10,716
raised
Jason Aimee 2021, 9 April 2021
The 1p36 Family Trust

Verified by JustGiving

RCN 1181988
We help people with 1p36 deletion syndrome to lead healthy, happy and productive life

Story

Thanks for taking the time to visit my JustGiving page.

Our beautiful daughter Olivia was diagnosed with the rare 1P36 chromosome deletion syndrome, but it doesn’t define her.

We recently went to the 1P36 family trust conference in London to celebrate people that live with Olivia’s condition & to learn more about the rare, chromosome deletion syndrome.

So many inspirational stories & people!

🌟Olivia made the wall of fame bless her, SO,SO proud of her❤️👶

We will make her, the very best version of her ☺️

Any donations will help families and children get the care and vita therapy they need.

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About the charity

The 1p36 Family Trust

Verified by JustGiving

RCN 1181988
The 1p36 Family Trust, is set up to support and educate families affected by the rare chromosomal disorder, 1p36 deletion syndrome, that affects 1:5000/10,000 births, it causes developmental delays, heart conditions and seizures.

Donation summary

Total raised
£10,715.90
+ £1,586.53 Gift Aid
Online donations
£10,715.90
Offline donations
£0.00

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