About Williams Syndrome Foundation
The Williams Syndrome Foundation was formed in 1980 and is run by parents for parents of children with this rare condition which causes heart and kidney problems and learning difficulties. It desperately needs funds to finance its ambitious research and family support programmes which include national conventions and regional meetings.
http://www.williams-syndrome.org.uk
matt.burrows@williams-syndrome.org.uk
Williams Syndrome Foundation Registered charity number 281014