Story
Laura was diagnosed with FND in 2013 after falling ill 2 weeks after her wedding. It's so important to raise funds and awareness for this little known condition. Laura and her family, quizmaster (dad) Traviss and mum Denise want to give back as FND Hope UK have been an amazing support. Laura has developed a fundraising shop to give back too: www.consciouscrafties.com/Crafties/adorable/fnd-hope-fundraising-shop and you can order items to be delivered in UK and she donates from every purchase. This is another way you can support raising funds and awareness.
FND Hope UK is part of the first and only global patient-led charity for people with Functional Neurological Disorder. Originating as a grassroots campaign, it uncovers the hidden world of FND and empowers those affected to live their best possible life.
Functional Neurological Disorder (FND) is a problem with the functioning of the nervous system and how the brain and body send and receive signals. This causes a range of neurological symptoms such as seizures, weakness, paralysis and chronic pain.
FND has multiple causes and can be triggered by physical injury, psychological or other trauma to the brain and or body. This stops the nervous system working properly. The disruption to the signals is like letters being sent to the wrong address, despite having the correct label.
FND is the most common condition you have never heard of. It is the second most frequent reason for a neurology outpatient appointment and more prevalent than Multiple Sclerosis or Parkinson’s disease. But stigma means people wait years for diagnosis, leading to wasted, expensive medical visits, worsening symptoms and distress.
FND Hope UK's ambition is faster diagnosis, equal treatment and better care of FND to transform the lives of individuals and their loved ones. By building leading medical expertise in the UK, we can support the wider health and social care system.
Lorraine Kelly Patron for FND Hope UK "I will fight hard for everyone with FND to get the diagnosis, treatment and care they deserve".
FND Hope UK is part of the first & only global patient-led charity for people with Functional Neurological Disorder. Registed Charity England & Wales (1173607) and Scotland (SC048333)We are a force for change, uniting patients and their families with leading researchers and advocates to pioneer a new standard of care for FND.Our mission is to promote awareness, support affected individuals and advance research.