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I'm going to propel myself - on foot and by bike - 150 miles through the month of April, and you can sponsor me to do it! I'm raising money for the Mikaere Foundation, which funds research into Nonketotic Hyperglycinemia.
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Get moving with the NKH 100 Mile Virtual Challenge!100 Miles along the Thames Path – Streatley to Sea! Walk, run, cycle, swim, dance – you choose! Anyone, anywhere can participate. All you need is a smartphone. All proceeds raised go towards NKH Research.
Nonketotic Hyperglycinemia (NKH) is a rare and terminal neurometabolic disorder that affects children. It means they can't process glycine, which is a neurotransmitter. Toxic levels of glycine cause the neurones to overfire and die, causing brain damage and severe disability. It's also life limiting - 80% of children diagnosed with NKH don't see their first birthday.
The Mikaere Foundation supports Prof Nick Greene at UCL in London, who is the closest to a clinical trial for gene replacement therapy - a treatment which would radically improve the quality of life of kids with NKH. Please help us fund a cure!