Tony Elford

Tony's 100 - no, 150! - Miles for NKH

Fundraising for The Mikaere Foundation
£150
raised of £300 target
NKH 100 Mile Challenge!, 22 March 2023
The Mikaere Foundation

Verified by JustGiving

RCN 1200720
We support families living with NKH to fund research and raise awareness

Story

I'm going to propel myself - on foot and by bike - 150 miles through the month of April, and you can sponsor me to do it!  I'm raising money for the Mikaere Foundation, which funds research into Nonketotic Hyperglycinemia.

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Get moving with the NKH 100 Mile Virtual Challenge!100 Miles along the Thames Path – Streatley to Sea! Walk, run, cycle, swim, dance – you choose! Anyone, anywhere can participate. All you need is a smartphone. All proceeds raised go towards NKH Research.

Nonketotic Hyperglycinemia (NKH) is a rare and terminal neurometabolic disorder that affects children. It means they can't process glycine, which is a neurotransmitter. Toxic levels of glycine cause the neurones to overfire and die, causing brain damage and severe disability. It's also life limiting - 80% of children diagnosed with NKH don't see their first birthday.

The Mikaere Foundation supports Prof Nick Greene at UCL in London, who is the closest to a clinical trial for gene replacement therapy - a treatment which would radically improve the quality of life of kids with NKH. Please help us fund a cure!

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About the charity

The Mikaere Foundation

Verified by JustGiving

RCN 1200720
The Mikaere Foundation supports families with children who have Nonketotic Hyperglycinemea. We raise awareness, connect families and fund research into NKH treatment. We bring hope and build futures for NKH kids.

Donation summary

Total raised
£150.00
Online donations
£150.00
Offline donations
£0.00

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