Darren Thompson
Graham's 100 minutes organ improvisation for tofs 100 challenge
Fundraising for TOFS
Story
Graham and Auriole are supporting Dougie once again by raising money for TOFs charity. "Grandad" will be playing the organ completely improvised for 100 minutes at St James Church in Louth , on May 3rd 11 till 1240. He will be doing this to raise awareness of the TOF charity.
As many of you will be aware our son Dougie was born with TOF OA and the support we have had from Sheffield and TOF charity was amazing.
It's a condition he will deal with daily and it would be great if we could spread awareness and support this charity so they can go on helping other kids like Dougie.
We provide support for those born unable to swallow, due to the rare congenital conditions Tracheo-Oesophageal Fistula (TOF), Oesophageal Atresia (OA) and associated conditions. TOF/OA affect one in every 3,500 babies, and can only be repaired, not cured. When new parents hear the devastating news that their precious newborn baby has TOF/OA, we want to be there for them. From that first moment, to living with the condition as adults, we offer vital support and friendship along the way. Thank you so much for helping us to support our members.