Woody's Warriors

Team fundraiser1 membersCF Warriors
£9,284
raised of £10,000 target
Event: Warrior Games 2023, on 17 June 2023
CF Warriors

Verified by JustGiving

RCN 1178063
We help children with cystic fibrosis to get into exercise & improve their lives

Story

Three weeks into his life, Woody (Amanda & my 3rd baby) was given the diagnosis of Cystic Fibrosis (CF). CF is a genetic lung condition - one faulty gene leading to a perfect environment for harmful bacteria to manifest & attack the well-being of the sufferer, from the inside. Though there is currently no cure for CF, the research & development is making fantastic ground - such that modulators are enabling almost second lives for 90% of the community. Unfortunately, Woody has a gene-type that lies in the 10% for which these modulators currently can't accomodate. But the more money raised, the closer our dream of a life-changing drug for Woody becomes.

Woody's daily routine involves between 1-2 hours of physio & medication and anywhere between 20 - 50 tablets. That's every day, without relent. But every day, Woody keeps smiling & thriving, never complaining and working hard to maintain his health like a true Warrior. He's an inspiration to our family and we intend to be exactly that to him. And what better way than motivating those with CF to prioritise sport & exercise.

So in June, myself & three amazing friends (Fieldy, Shaun & Bruce) are competing in The Warrior Games, representing Woody and all of those who work tirelessly in pursuit of a 'normal' life. The event is a 24-hour tag-team relay race of endurance circuits. That's 24 hours of non-stop circuits!! The event has been created by Josh Llewellyn-Jones, a CF sufferer but a true hero for all of those with CF & their families. We are not warriors, but will do all we can to complete the Games with the same drive, spirit & joy that Woody brings every day. Our 'win' is to raise a significant sum for the CF Warriors & CF Trust to continue their life-changing work.

For more info on the event, please follow this link - https://www.cfwarriors.org.uk/warrior-games/

Thanks so much for anything you can donate

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About the charity

CF Warriors

Verified by JustGiving

RCN 1178063
CF Warriors is a charity set up to help get children with cystic fibrosis into sport and exercise to improve their lives and increase their life expectancy.

Donation summary

Total raised
£9,284.00
+ £1,946.25 Gift Aid
Online donations
£8,784.00

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