Tiny Nora Mackay was born in 2022 at just over a pound. 2 and a half years later, she now weighs just over 9 pounds. Whilst this is unusual, it is because Nora has an extremely rare genetic disorder called Primordial Dwarfism.

Primordial Dwarfism affects around 200 people in the world, and means they become proportionately small all over. The Walking with Giants Foundation helps support these people and their families through their entire lives, but rely completely on donations from the public.

Following a smashing success last year, we are once again raising money by doing the Kiltwalk and this time some of us will also climb Ben Nevis in June.

Any donations are HUGELY appreciated! Details on the WWG foundation are below, which we are raising money for.

About The WWGF

The Walking with Giants Foundation was founded by Sue and John Connerty in 2008. In 2005, their son Alex was born with an unknown condition, however just over a year later he was pre-diagnosed with a condition called Microcephalic Primordial Dwarfism Type II, their son’s doctors at Alder Hey Hospital in Liverpool explained that he was the first child to be pre-diagnosed with the condition in the UK. In those first years of bewilderment and anxiety, John and Sue set on a mission to find out more information.

With more families getting in touch, John and Sue supported by friends created the Walking With Giants Foundation in 2008 to help other families like themselves and look into the causes of MPD.

It is now over 11 years since those early days and the Walking with Giants Foundation now supports children and families from across the world.

Through the Foundation Sue and John have:

Helped change the understanding of some of the original sub-types of Microcephalic Primordial Dwarfism

Along with finding new subtypes and the genes that cause them via research conducted by Doctors, Scientist on the WWGF Medical Advisory Board and collaborators from other research teams from around the world,

Created a network of support and friendship for families here in the UK and around the world

Connected over 100 families and removed the isolation families feel

Brought to the attention of the general public that these conditions exist

Removed the stigma families feel about the condition and empowered parents to positively deal with what lays ahead.