Story
September is Children's Cardiomyopathy Awareness Month and the time to raise awareness of pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease. Join me and Team CCF during the month of September as I Walk for Cure to support children with cardiomyopathy and their families.
About #teamoneheart
Arthur and his identical twin brother Eddie were born on March 7, 2015, both with the diagnosis of dilated cardiomyopathy (DCM) with left ventricular non-compaction (LVNC). Since then, their parents fought to keep them stable on medications to avoid transplant. On October 7, 2016, at exactly 19 months old, Arthur was hospitalized with ventricular tachycardia as a result of his worsening heart function. After 7 weeks of battling heart failure, Arthur's condition worsened to the point that the doctors determined he would need a new heart to survive. The battle to bring Arthur home stable with his own heart turned into a battle of life or death.
After being listed for 100 days, Arthur received his new heart on March 3, 2017 at Lurie Children's Hospital thanks to the donor's family's compassionate and selfless gift.
Although transplant is not a cure, it provides hope and a chance at life for Arthur. Now that Arthur received his new heart, he still needs ongoing treatment and physical therapy to regain strength and conditioning. As the Kim family continues to navigate this difficult journey, they appreciate all the support they continue to receive from their community.