Julie and Lena

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Team fundraiser2 membersCongenital Hyperinsulinism International
US$7,851
raised of US$10,000 target
Event: 2021 Million Dollar Bike Ride, on 12 June 2021
Join Team CHIbra in raising funds for research that would find tools for better management of hyperinsulinism, new treatments, and one day, a cure.

Story

Hi my name is Julie and I'm from Illinois!

I was born with Congenital Hyperinsulinism. It is a rare disease where the pancreas secretes too much insulin. I was born with a blood sugar of 10, this is dangerously low. A normal blood sugar is between 70-90. I was immediately put on a sugar drip because my doctors thought this was temporary. After about a week on consistent low blood sugars, I was put on Diazoxide which kept my blood sugars up. This medicine was a lifeline for me for twelve years, until I grew out of it. I've been able to live a "normal" life as a seventeen year old. Despite all the genetic tests I've had, I still do not know the type of Hyperinsulinism I have. By donating to research, you can help other people like me find answers.

Hi my name is Lena and I'm from California!

My birth was a bit traumatic to say the least, and it wasn’t until the nurse checked my blood sugar that the doctors really realized something was wrong. I was diagnosed with Hyperinsulinism. When I was fifteen months old, I went to the CHOP, a children’s hospital in Philadelphia known for its CHI care. Eventually I was given a pump that continuously pumped medicine into my body to maintain my sugar levels. Thankfully, by third grade, I outgrew my condition! However, to this day hyperinsulinism remains an important part of my past and I hope to make a difference for CHI in my future.

Thank you so much for donating!

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About the campaign

Join Team CHIbra in raising funds for research that would find tools for better management of hyperinsulinism, new treatments, and one day, a cure.

About the charity

Congenital Hyperinsulinism International (CHI) is a leading nonprofit dedicated to improving the lives of babies, children, and adults living with congenital hyperinsulinism (HI).

Donation summary

Total raised
US$7,851.00
Online donations
US$7,551.00

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