Story
June 2023 is Cavernoma Awareness Month and this year we're doing something particularly special. We're climbing Snowdon, the highest mountain in Wales, to help raise awareness about cavernoma and also to raise funds for Cavernoma Alliance UK.
A cavernoma is a common but often unheard of condition caused by a cluster of abnormal blood vessels in the brain or spine. Cavernoma Alliance UK supports people affected by cavernoma. Our mission is to improve the quality of life for those affected through education, support and research.
To find out more visit www.cavernoma.org.uk.
Georgia was diagnosed with a frontal lobe cavernoma in July 2007, at aged 2 years after developing epilepsy. She underwent ECG, CT, MRI and angiograms before undergoing 6 hour craniotomy surgery to partly remove the cavernoma which caused two bleeds on her brain and a stroke. The surgery left her with an aquired brain injury, memory problems, poor dexteriority and affects her dailly and she’s had to overcome a lot of challenges. She gets frequent headaches and is at risk of further seizures and bleeds.
Team members (1)
- £180 of £250