In loving memory of Elijah Peterman 3/17/2016 - 4/21/2020.

Eli was born as the first grandkid on both sides of the family, and boy were we all excited. After a few signs of stunted development, Eli was hospitalized at six months old in order to complete a number of tests. After no conclusions were reached, the Petermans were sent home to wait for the genetic test results. About a month later, Eli spiked a fever and began having seizures. After three long days of seizures, Eli lost his vision, his ability to eat by mouth, and all muscle control of his body. Our little boy who was sitting up, loving banana purees, and interacting with us just a week before could no longer do so.

Two days before Thanksgiving, we received the genetic test results. At eight months old, Eli was diagnosed with a very rare form of Limb-Girdle Muscular Dystrophy called Type 2S, which behaved more like a mitochondrial disorder in Eli. Very few cases of this type have ever been documented, as it is a relatively new discovery, and the symptoms and trajectories among patients vary dramatically. So much more research is needed.

Over the next three years, Eli faced countless challenges and hospitalizations (literally, we lost count). Eli suffered from brain atrophy which impacted nearly every system in his body. Eli was blind, wheelchair bound, received all of his nutrition from a PICC or central line, required multiple respiratory treatments every day, and required multiple medications for seizure prevention, pain management, and reflux.

Despite this, not a day went by that Eli didn't spread some joy, melt some hearts, or inspire someone fighting their own battle (small or big). Eli's ability to light up a room with his uncontrollable laughter, signature "Irish jig," or his stunner combover was unmatched.

On April 21, 2020, after a long battle with this terrible disease, Eli left his earthly home. His pain is no more. His legacy lives on.

In Eli’s short time on this earth, he taught us all countless lessons that we will cherish forever. He taught us to put our trust in the Lord, to always be thankful, to be patient, and to never take anything for granted. Most importantly, Eli taught us that even in the darkest times, we must be brave and we must choose joy.

Eli's story is an inspiration to everyone who hears it. Which is where Team Eli comes in! Raising money to bring joy to kids like Eli while sharing his story is the least we can do to honor this superhero's legacy.

Please consider being a part of our team or making a donation today. Thank you in advance for your support! It means the world to us.

#TeamEli #BeBrave #ChooseJoy