Story
We love someone with Ehler's Danlos Syndrome and recognize how very difficult it is to live with this disorder. We are walking and raising money for The Ehler's Danlos Society on behalf of Stephanie Vera-Klein.
Ehler's Danlos Syndrome is a genetic connective tissue disorder that negatively impacts joints and several body systems. There is currently no cure for this disorder.
Living with a rare genetic condition is very difficult. Because EDS is a rare genetic condition, that means it is very difficult to get diagnosed and subsequently very difficult to find doctor's who know how to treat the associated symptoms of EDS. Join us in raising awareness and funds for the rare. Every story shared and every dollar donated goes towards finding answers and positive outcomes for people like Stephanie and other people who struggle with the rare!