Sussex UNITED2EndMND

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Team fundraiser3 membersMotor Neurone Disease Association
£2,616
raised of £3,000 target
We fund care, campaigning and research to achieve a world free from MND

Story

The 3 branches of the Sussex branches of the Motor Neurone Disease Association are combining for a fundraising walk along the promenade at Brighton on Sunday, August 29. This starts at 2 PM at The Big Beach Café, Hove Lagoon, BN3 4LX and will proceed to the i360/West Pier and back to Hove again.

If you would like to donate, this is the place to do it, although some individuals will have their own pages which will feed into the grand total. Proceeds will be split evenly between the 3 branches.

As well as able-bodied adults, there will be wheelchairs, pushchairs, children and, dogs! The volunteers will be resplendent in blue and orange MND Association T-shirts and other regalia to raise awareness of MND at the same time as much-needed funds through a bucket collection.

50% of those diagnosed with this devastating, incurable neurological condition sadly pass away within 2 years of diagnosis. It takes away the ability to use your limbs, to speak, to eat and, ultimately, to breathe. MND should not be thought of as a rare condition, the lifetime risk of getting it is 1 in 300, similar to multiple sclerosis.

The effect MND has on younger people and their families is clearly shown by the recent media coverage of three famous sportsmen; Doddie Weir (rugby union), Rob Burrow (rugby league) and Stephen Darby (football). Their stories illustrate the urgent need for treatments to slow the condition and ultimately to find a cure.

This is also a great opportunity for those looking for volunteering opportunities to meet with MND Association supporters, patients and carers. All are very welcome. For further information please contact the following at the three branches.

Julie Taghan - West Sussex North e.g. Burgess Hill, Crawley, East Grinstead, Haywards Heath, Horsham julie@mndwestsussexnorth.com

Maureen O’Neill - West Sussex South e.g. Billingshurst, Chichester, Petworth, Shoreham, Worthing mausyoneill@yahoo.co.uk

Sharon Bass - East Sussex, e.g. Brighton, Crowborough, Eastbourne, Hastings, Uckfield denissharon12@hotmail.com

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About the charity

The MND Association focuses on improving access to care, research and campaigning for those living with or affected by MND in England, Wales and Northern Ireland. If you or a loved one need practical or emotional support, call our Connect Helpline on 0808 802 6262, Mon to Fri between 9am and 4pm.

Donation summary

Total raised
£2,615.18
+ £287.50 Gift Aid
Online donations
£2,615.18

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