Myself and Dan (Super Sebs dad) are running to raise awareness of ACC. Agenesis of corpus callosum (ACC) is a rare disorder that is present at birth (congenital). It is characterised by a partial or complete absence (agenesis) of an area of the brain that connects the two cerebral hemispheres. This part of the brain is normally composed of transverse fibers. The cause of agenesis of corpus callosum is usually not known.

The gorgeous super Seb has complete absence. This condition has very limited research as its so rare. The charity chosen has helped and supported Sebastian‘s parents Dan and Amy to try and understand the condition, supporting him to be the best he can be. They are doing a cracking Job.

Sebastian shows such grit and determination which i hope Dan and I can try and match during these challenges through 2022. Please support us!