South Coast Striders

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Team fundraiser6 membersReverse Rett
£17,465
raised of £20,000 target
Event: South Coast Ultra Challenge 2024, on 7 September 2024
Reverse Rett

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RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

The South Coast Striders will be completing the South Coast Ultra Challenge from Eastbourne to Arundel to raise money to keep Rett Syndrome research moving forward.

The first UK gene therapy clinical trial for Rett syndrome has recently been approved and there has never been a more vital time to fundraise for Reverse Rett, who will be pivotal in working with the pharmaceutical companies running the trial.

Reverse Rett also fund the CIPP Rett Centre at King's College Hospital, which is open to everyone with Rett in the UK. They are dedicated to finding patients in the UK and adding them to the Rett Registry, to ensure that treatment, when it becomes available, is accessible to all.

We will be inspired to keep going by those living with Rett Syndrome and the team will be running in honour of not only their loved ones, but everyone with Rett.

Please support the team and let's keep fighting Rett!

Team members (6)

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£17,464.57
+ £3,487.88 Gift Aid
Online donations
£17,464.57

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