We lost mum to MSA just before Christmas. After finally being diagnosed, she bravely battled this disease for 2 years. She passed peacefully on the morning of the 17th December. She will be sorely missed by her family and friends and we want to take this opportunity to thanks all the people involved in her care until the end. We will be celebrating her life on Thursday 9th January at West Herts Crematorium at 3.20pm and following this a get together at The 3 Compasses, Patchetts Green, Aldenham.

Multiple system atrophy (MSA) is a rare neurological disease with no known cause or cure. Affected families not only struggle with the symptoms of this degenerative condition (deterioration in walking, speech, balance and continence), but also faces the financial implications that life with MSA brings.

MSA Trust has a small grants scheme used to help people in these circumstances. These grants provide a varied range of support, from help towards purchasing mobility equipment, to respite care and counselling.

However, each Christmas, they find that the demand for support rises significantly, as their members understandably wish to travel to see their families, communicate via a Lightwriter, or make their homes more accessible and comfortable in the winter months. However, the Trust can only afford to provide a very limited number of grants each year. I am raising funds so more families affected by MSA can be helped through these grants. Please support me.