Reverse Rett Manc Runners

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Raising money for Reverse Rett

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Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

The Reverse Rett 'Manc' Runners will be running the Manchester Marathon on April 14th to raise money to keep Rett Syndrome research moving forward. The Reverse Rett office is in Manchester so it really feels like a home run!

With the first UK gene therapy clinical trial for Rett syndrome recently being approved there has never been a more vital time to fundraise for Reverse Rett, who will be pivotal in working with the Pharmaceutical companies running the trial, funding the CIPP Rett Centre at King's College Hospital, which is open to everyone with Rett in the UK and who are dedicated to finding patients in the UK and adding them to the Rett Registry UK to ensure treatment, when it becomes available, is accessible to all.

We will be inspired to keep going by everyone living with Rett Syndrome and the team will be running in honour of Abigail, Amber, Beth, Georgia, Shona and Sophie.

Please support the team and let's keep fighting Rett!

Team members (6)

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Donation summary

Total
£11,823.72
+ £2,084.00 Gift Aid
Online
£11,823.72

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