Sal and Clare Team Purnell Arial Adventures - Sky Diving and Wingwalking

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Team fundraiser2 membersCavernoma Alliance UK
£1,620
raised of £1,250 target
Cavernoma Alliance UK

Verified by JustGiving

RCN 1114145
We raise awareness of cavernoma to improve the lives of people affected

Story

Cavernomas are pretty rare and a typical one looks like a raspberry. It's filled with blood that flows slowly through vessels that are like "caverns". Only 1 in 620 people get them with only 1 in 400,000getting symptoms because they bleed. Sal unfortunately had a 'little bleeder' which was in danger of more catastrophically bursting and required removing, hence the brain surgery.

Whilst she has made a good recovery from her brain surgery and the cavernoma has been removed, Sal has been left with mobility difficulties and now walks with the aid of a stick and a functional electronic stimulation device.

Information, research and knowledge about Cavernomas is hard to come by. Sal faced with a life changing diagnosis found the Cavernoma Alliance invaluable. They provide practical support, friendship and are a focus for clinicians to connect with patients and Sal was able to make decisions about brain surgery with an understanding of her condition. Without the support of the Cavernoma Alliance UK Sal's recovery journey would have been much more challenging. The Cavernoma Alliance UK will be a life time source of information, support and advice for her and the fellow patients she has met since her diagnosis.

The Cavernoma Alliance UK is currently financially struggling and needs £30,000 to meet it's current commitments. Sally and Clare are hoping their wing walking and skydiving adventures will contribute to this. On August18th 2022 the intrepid duo will be undertaking a 15 000ft tandem skydive at Old Sarum, the highest available in the country! Not content with this, and both egging each other on, this will be followed by a wing walk at Compton Abbas Airfield in Dorset on September 3rd 2022. They are hoping to raise as much money as possible for the Cavernoma Alliance UK.

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Team members (2)

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About the charity

Cavernoma Alliance UK

Verified by JustGiving

RCN 1114145
Cavernoma Alliance UK (CAUK) supports people affected by cavernoma. A cavernoma is a common but often unheard of condition caused by a cluster of abnormal blood vessels in the brain or spine. Our mission is to improve the quality of life for those affected through education, support and research.

Donation summary

Total raised
£1,619.02
+ £337.50 Gift Aid
Online donations
£1,619.02
Offline donations
£0.00

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