Shirley and David Popham's son, Ollie was 5 year's old when he was admitted to Helen House hospice with 6 months to live - he survived, and at 14 he was diagnosed with a little known rare condition called Dravet's Syndrome.

Miraculously Ollie is turning 32 on 5th May this year and to support and raise awareness Dravet Syndrome UK, a team of us will be participating Every Day in May for Dravet 2025!

Join this epic team in walking, running, cycling or swimming 5km or 2km every single day throughout May, at a time and place to suit you.

Our aim is to gather together friends, team mates and colleagues to participate with us

to raise £3000 for Dravet Syndrome UK.

This will support their vital work in bringing hope to families living with Dravet Syndrome through support, education and medical research. To find out more about their work, visit www.dravet.org.uk.

We are going to need all the support and encouragement we can get to keep us going through this huge challenge, so please dig deep to spur us on. All donations, no matter how big or small, are greatly appreciated and make such a huge difference. Thanks for your support!