The Lily Foundation was set up in by Liz Curtis in 2007 in memory of her daughter (Lily) who passed away from mitochondrial disease at 8 months old. Liz found that there was not a lot of information available about mitochondrial disease and therefore decided that she would be the one to help others who were in her position.

We have chosen to fundraise for the Lily Foundation in memory of Otto - the son of one of our alumnae Millie Hunter - who passed away from mitochondrial disease when he was only 4 months old. The Lily Foundation does essential work in supporting families of those affected by mitochondrial disease, spreading awareness of the condition which is too unknown and underfunded as well as providing the link between medical professionals and patients. It aims to continue its research with the hope of finding a cure for mitochondrial disease as well as raise awareness of its devastating effects.

We knew we wanted to fundraise for the Lily Foundation after we heard Millie’s story ourselves and realised what an amazing charity it is. It is incredible to see the work that they do and to know that the money which we raise will go towards such a worthy cause.

A link to Millie and Otto’s story can be found here:

https://app.frame.io/reviews/f8ead532-2f05-40d1-8bd9-5596435591a7/e14adaab-7bbf-4f6f-98b1-6dd5c00cfcaa?version=bfba35b2-c2f3-4c39-90fc-fc651a46ec8b

Any donations would be greatly appreciated :)

Thank you for all your help,

Katie, Kate, Anusha, Anna and Sophie

Head Girl Team 2024/25