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“A Wish For Eben” steps Challenge. The Molson Coors National Retail team are supporting Muscular Dystrophy UK and Eben Naylor, who has a rare form of this muscle wasting disease. Eben is a Dinosaur-mad 3 year old, so from the 15 Aug to 3 Sept (50 days), the Molson Coors team (and friends!) will take the 10 million steps from our Head Office in Burton on Trent, UK…. to reach the Dinosaur Capital of the World in Drumheller, Canada.
Ebens muscles are unable to produce Collagen IV protein and alongside his symptoms this led to him being diagnosed with Ullrich Congenital Muscular Dystrophy (UCMD). UCMD is a severe, life-limiting, progressive condition that leads to extreme muscle weakness. It affects the skeletal muscles which impacts areas like walking, if Eben gains the ability to walk he will lose this skill in early adolescence, he is also likely to face respiratory issues, muscle contractures and scoliosis later in life. Treatments and equipment are available to help manage these but sadly, there is currently no cure for UCMD. however there is hope in the form of promising research being done in this area.
80% of funds raised will go towards UCMD research and 20% will be kept in a welfare account for Eben's future needs.
Team members (1)
Join team- £1,796 of £2,000