Story
September is Children's Cardiomyopathy Awareness Month and the time to raise awareness of pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease. Join me and Team Izzy Bizzy Boo during the entire month of September as we Walk for Cure to support children with cardiomyopathy and their families.
We are walking for our 3 year old daughter, Isabelle, who was diagnosed with dilated cardiomyopathy this past January. Our world was turned upside-down when we starting going on a journey of visits to various doctors/specialists, testing/procedures, and she started taking multiple cardiac medications; however, we have yet to find a cause. Isabelle has been such the trooper throughout this entire year because of the strong spirit she has inside her. We know it will be a lifelong process for her and we would like to make sure more research is being done about this rare disease to hopefully come up with a cure one day. Please support our walk efforts and help us meet our fundraising goal. Your support means a great deal as this is a cause that is near and dear to our hearts (no pun intended).
The Children's Cardiomyopathy Foundation (CCF) is a national 501(c)(3) organization focused on accelerating the search for causes and cures for pediatric cardiomyopathy. Since 2002, CCF has grown into a global community of families, physicians, and scientists dedicated to improving diagnosis, treatments, and quality of life for children with cardiomyopathy.
Team members (1)
- US$1,565 of US$1,000