GIVE A LITTLE Team
Join teamTeam fundraiser • 3 members • Naomi House Children’s Hospice (Wessex Children's Hospice Trust)
Story
Naomi House & Jacksplace are hospices for children and young adults with life limiting conditions and life threatening conditions.
The charity provides care to people living in communities across the seven counties of central southern England.
The charity has two specialist units: Naomi House for children, and Jacksplace for teenagers and young adults. Each unit offers an appropriate environment for each age group. Services offered include respite care, emergency care, end-of-life care and ongoing bereavement support.
We seek to raise £9.2 million to run the two units each year, with less than 11% of income coming from the Government and other statutory bodies. As a result, we rely on the generosity of people in the community like yourself to continue its work. Your support enables the charity to provide these crucial care services, free of charge, to children, young adults and their families, so thank you!
Our Team are sponsoring 3 very special children and their families who rely on Naomi House to give them the support and respite that is very much needed.
5 year old Eva has Rett syndrome, a rare genetic disorder which affects brain development. It is a regressive condition which results in severe mental and physical disability, affecting around 1 in 12,000 girls each year. It rarely affects boys. Eva has very complex needs and has to have 24 hour care. She lives with her mum Kim, dad Luke, 8 year old brother Taylor and 18 month old sister Maya.
Ollie was born with Alternating Hemiplegia of Childhood, meaning any muscle in his body can become paralysed at any time, including his heart and his lungs.
Bruce has severe bi-lateral cerebral palsy, meaning all of his muscles and limbs are affected. He has no independent mobility and is completely dependent on others for doing everything, from the simplest things such as holding a toy, to all of his medical and personal care needs. His internal muscles are also affected, which causes an unsafe swallow and so he is fed via a tube. Bruce also has epilepsy, and although cerebral palsy makes life incredibly difficult and makes him prone to chest infections, his seizures have been the biggest challenge. These are what triggered the family to ask for a referral to Naomi House.
Team members (3)
Join team- £798 of £300
- £375 of £350
