Team fundraising for Stickler Syndrome UK

Raising money for Stickler Syndrome UK

£1,581
raised of £1,500 target by

London Marathon 2025 · 27 April 2025 · Start fundraising for this event

Stickler Syndrome UK

Verified by JustGiving

RCN 1060421

Story

Thanks for taking the time to visit my JustGiving page.

In 2016 my daughter, Bea and I, were diagnosed with stickler type 2 syndrome, a genetic disorder that affects our eye sight. It also turned out that my 2 sisters, 2 nieces and 2 great nephews also have it. In 2017 myself and Bea underwent Cyrotherapy at Addenbrooks hospital, under the fantastic care from Mr Snead and his team.

Mr Snead has gone on to treat my whole family who have Sticklers and continue to care for us.

Sarah Cooper is raising money for this wonderful variety as Bea is her God daughter.

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About the charity

Stickler Syndrome UK

Verified by JustGiving

RCN 1060421
Stickler Syndrome UK aims to raise awareness of Stickler syndrome amongst the medical profession; promote the value of early diagnosis and help preserve vision, hearing and mobility (particularly the prevention of sight loss in children and adults).

Donation summary

Total
£1,580.51
+ £354.30 Gift Aid
Online
£1,580.51

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