Story
2024 marks 10 years since Emily was diagnosed with a rare brain tumour at Great Ormond Street Hospital
Thanks to the generosity of many supporters, Emily’s Dad Ashley has raised over £155,000 for GOSH, running the London Marathon each year. In addition, Emily’s Aunty Helen has also raised money through running marathons and also cycling ‘Ride London’, and other friends and supporters have done their bit to contribute to the Emily Grote TeamGOSH total.
GOSH continues to play such a big part in Emily's life and without all the treatment, care and support that she has received there, she wouldn't be with us today.
Since June 2014 when she was first diagnosed, Emily has undergone countless surgeries at GOSH. As a consequence of the tumour, she has completely lost her eyesight. Damage to her pituitary function means that she is on hormone replacement medication throughout each day. She suffers from hypothalamic obesity, as well as autism caused by damage to the cognitive functions of her brain.
Despite all these immense challenges, Emily is incredibly cheerful and positive. She enjoys attending her school, loves playing with her siblings, singing, playing the piano, swimming and riding her tandem bike with her Dad at the weekends.
Similarly, Great Ormond Street is such an incredibly inspiring, uplifting and positive place: without the support and encouragement of all the staff there we could not have got through the past ten years. Raising money is a small way of saying 'thank-you' for all that they continue do to do for Emily and for us.
Thank you for your generous support, which means a great deal.
Team members (11)
Join team- £27,429 of £10,029
- £23,324 of £10,000
- £21,619 of £10,000
- £20,836 of £10,000
- £20,007 of £15,000