Team fundraising for The British Porphyria Association

Team fundraiser2 membersThe British Porphyria Association
£125
raised of £1,000 target
Empower patients to UNDERSTAND their condition, CONNECT with others, build the confidence to TAKE CONTROL and to SHARE their story. Help us to deliver an outdoor activity event designed for young people with erythropoietic protoporphyria (EPP).

Story

We are 3 Highworth students, currently volunteering for the Gold Duke of Edinburgh award, and we are looking to raise money for the BPA through multiple events, such as livestreams, purple days and many more!

Join the campaign to fundraise for a Residential Activity Weekend developed primarily for children and young people affected by erythropoietic protoporphyria (EPP).

EPP is a rare genetic condition that causes excruciating pain and skin damage on exposure to sunlight. Symptoms make daily activities, including education, sport and personal relationships a huge challenge – impacting negatively on physical health, relationships and, in the long-term, financial stability and psychological and emotional wellbeing.

Team members (2)

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About the campaign

Empower patients to UNDERSTAND their condition, CONNECT with others, build the confidence to TAKE CONTROL and to SHARE their story. Help us to deliver an outdoor activity event designed for young people with erythropoietic protoporphyria (EPP).

About the charity

The BPA is committed to advocating for, supporting and educating porphyria patients, relatives and medical professionals, so as to improve the quality of life for those living with the different types of porphyria. We promote disease awareness and the advancement of research into new therapies.

Donation summary

Total raised
£125.00
+ £28.75 Gift Aid
Online donations
£125.00

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