AndynCharlotte Stockley

Join team
Raising money for PNH Support

£578
raised
24 supporters
Super Rare is a campaign where we are asking people to fundraise to help people affected by rare bone marrow conditions. The theme for 2023 is Stronger Together - because seven small charities are coming together to join the campaign

Story

PNH Support is a charity that supports people affected by Paroxysmal Nocturnal Haemoglobinuria (PNH). The charity provides information and peer to peer support, brings people together, advocates on their behalf and holds a biennial family conference

Team members (1)

Join team

Help AndynCharlotte Stockley 's team

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on:

About the campaign

Super Rare is a campaign where we are asking people to fundraise to help people affected by rare bone marrow conditions. The theme for 2023 is Stronger Together - because seven small charities are coming together to join the campaign

About the charity

PNH Support

Verified by JustGiving

RCN 1161518
www.pnhuk.org
We support patients living with Paroxysmal nocturnal haemoglobinuria (PNH) and their families in England, Wales and Northern Ireland . Our vision is "No PNH patient in England, Wales and Northern Ireland is alone. All are represented and enabled to live to their full potential with PNHi". s an ultra-rare bone marrow failure disease. Our mission is "We provide support through educational resources and advocacy, as well as peer to peer contact." PNH is acquired (which means it is not inherited) and affects 1.3 people per million. Those living with this condition can require life long treatment to address symptoms such as extreme fatigue, breathlessness, pain and sometimes complications such as blood clots and kidney damage.
Find out more about fundraising with JustGiving

Donation summary

Total
£578.00
+ £98.75 Gift Aid
Online
£578.00

Charities pay a small fee for our service. Learn more about fees