Our daughter Ellen was with us for 7 months. She had the best laugh, loved raising her eyebrows and was pure sunshine. We call her the queen of County Down.

Sadly after 6 amazing months we learnt Ellen had Gaucher's type 2, an incurable and fatal metabolic condition. Ellen passed when she was seven months old.

Her daddy Andrew and uncle Dee Dee, are running the Belfast city marathon to raise money for Gaucher's research which is currently studying gene therapy in a clinical trial to cure Gaucher's type 2 .

All donations and well wishes are greatly appreciated

Love

Orla and Andrew and Ellen