Having been diagnosed with Jeavons Syndrome, one of the rarest forms of Epilepsy, at the age of 8, I've spent the last 18 years learning to live with my diagnosis. I don't tend to suffer from Grand Mal seizures, but instead, have daily eyelid myoclonias.

Jeavons Syndrome will be a life-long disease for me, that will have to be constantly controlled by medication. This is the reason that on 5 October 2019, I will be walking a 13-mile section of the Jubilee Greenway through London, to raise awareness of what is so often called the Invisible Disability.

On average, 1 child in every primary school and 5 in every secondary school has Epilepsy. Children with Epilepsy are also 4 times more likely to suffer Mental Health-related problems than their friends. Young Epilepsy provides incredible support to these children and their families. They create a support system that so many people might not have access to. 

Thanks in advance for any donations or support for this brilliant charity xxx