About The Schinzel-Giedion Syndrome Foundation
Our mission is to provide support to families caring for a child with Schinzel-Giedion Syndrome (SGS), to raise awareness of SGS and to facilitate and support vital medical research that will improve the quality and length of life of children living with this life-limiting, rare genetic condition.
www.sgsfoundation.org
contact@sgsfoundation.org
The Schinzel-Giedion Syndrome Foundation Registered charity number 1186327