Story
From Mark's wife:
Mark my husband died from Pulmonary Fibrosis last year, sadly I had not heard of this dreadful disease until Mark was diagnosed with it 7 years ago. Within weeks of diagnosis he became increasingly ill and became more dependant on oxygen as his lungs ceased to function properly, he knew it was a terminal disease but typical of Mark he handled it with great dignity and courage.
As the years passed by he became more breathless and limited in his mobility. He ended up being on oxygen 24 hours a day and virtually housebound.
Mark was a man with a huge zest for life and to see that gradually ebb away, day by day, was devastating for me and the family. Everyone who knew him will always remember his wonderful sense of humour,he just lived to laugh, sadly in the end he could not even laugh as it just took too much out of him.
I am desperate to raise the awareness of Pulmonary Fibrosis by supporting the charity Breathing Matters. This charity helps to fund University College Hospital London who are one of the leading research establishments trying to find a cure for Pulmonary Fibrosis.
How can you help? I have assembled a team who intend to walk the South Downs Way which is a 100 miles long and will take us 6 gruelling days, believe me when I say gruelling! It is a tough one as we are busy training on the Downs every weekend in preparation for the walk on the 5th May .
WE NEED YOUR SPONSORSHIP TO HELP UCLH TO CONTINUE THEIR RESEARCH SO OTHERS DO NOT HAVE TO SUFFER AS MARK DID.
Who are the team? Myself, Giordana Hulme his daughter,his elder brother PJ, two cousins Jeremy and Crispen,brother in law Harvey and good friend Matt.
The walk itself will start in Winchester and will be over 6 consecutive days ending in Eastbourne. We would welcome anyone that wants to join us on any of the legs
We will be staying at the Hotels listed below.We intend to set off from each Hotel at 0830 so if want to join us it is best to meet us at the Hotel Please note that on the Sunday we will be setting off from the KIng Alfred Statue in WInchester at 0900 not starting from hoteL.
PLEASE NOTE THE DATE NEXT TO EACH HOTEL IS THE NIGHT WE ARE STAYING AT THAT PARTICULAR HOTEL IF YOU WANT TO JOIN US FOR A DRINK OR TWO.
WE SET OFF FROM EACH HOTEL THE NEXT MORNING ON THE LEG LISTED BENEATH EACH HOTEL, IF YOU WANT TO JOIN US FOR THE WALK.
The programme for the walk.
Sunday 5th May-WInchester to Exton starting from KIng Alfred
Sunday Night 5th May Half Moon Petersfield. www.halfmoonsheet.co.uk Tel 01730263859
Monday 6th May -Exton to Cocking starting from Half Moon
Monday Night 6th May Half Moon Petersfield. As above
Tuesday 7th May - Cocking to Amberely starting from Half Moon.
Tuesday Night 7th May Swan Hotel Arundel . www.swanarundel.co.uk Tel 01903882314
Wednesday 8th May - Amberely to Ditchling starting from The Swan.
Wednesday Night 8th May The White Horse DItchling. www.whitehorseditchling.com Tel 01273842006
Thursday 9th May - Ditchling to Alfriston starting from The White Horse DItchling.
Thursday Night 9th May The Star Inn Alfriston . www.thestaralfriston.co.uk Tel 01323870496
Friday 10th May - ALfriston to Eastbourne 10 th May starting from the The Star Inn.
Remember 0830 start at each hotel we hope to see you on the day.
For further information on the starting points and where we will be staying, contact PJ.Email peter.hulme2@btinternet.com
Please help if you can.
Thank you.
Sheila