Zohra's fundraiser for Rubinstein-Taybi Syndrome Support Group
Fundraising for Rubinstein-Taybi Syndrome Support Group
Fundraising for Rubinstein-Taybi Syndrome Support Group
Hi I am Zohra and I am a mother to an RTS warrior (Aara)! Aara is my 6 year old daughter who was diagnosed with a rare genetic disorder called Rubenstien Taybi Syndrome (RTS). Aara is a happy individual who always has a smile on her face and loves to sing and dance. However with her diagnosis, there comes a load of challenges, such as behavioural, speech and language, learning disabilities and cognitive process disorders.
The RTS Support Group has organised a charity fund raising event where I am going to be climbing the Three Peaks in 24 hours on 7th October 2023! for someone has not really taken an interest in working out, I have joined the gym to get my self fit enough for the event. This is going to be a tough challenge , but totally worth it as I am raising funds for such an awesome charity
The RTS Support Group is a registered charity funded almost entirely by fundraising and voluntary donations.
They exist to provide support to families and carers of people affected by RTS, raise awareness of RTS amongst the medical community, and encourage and support research into the cause and effects of RTS.
Please be generous in donating to my great cause and I promise I am working hard to reach the top of all three peaks!!!
if you want to read more about Aara's Journey click here https://rts-warrior.com/
Thanks so much in advance
Love Zohra x
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