Sadly, we lost our courageous and beautiful mother, Yvonne, to PSP on 8th February 2025.

In memory of Yvonne, we are raising funds for the Jeffrey Young Research Programme for Progressive Supranuclear Palsy Research, in which Mum has participated.

The programme has been established through collaboration between the remarkable Anne Rowling Clinic and the University of Edinburgh. This three-year initiative unites internationally renowned expertise in human stem cells, drug discovery, and pathology. Its aim is to aid in finding treatments and developing new, earlier diagnostics for this debilitating disease.

Progressive supranuclear palsy (PSP) is a devastating, rare, progressive, and incurable neurodegenerative condition. Its prevalence is largely comparable to that of motor neurone disease. PSP presents with a variety of symptoms, and most symptoms impact muscle movement or motor control, while other non-motor symptoms may affect mood or behaviour. Typically, individuals with PSP lose their independence within two to three years and pass away within six years of diagnosis. Currently, there is no cure or disease-modifying treatments available.

The cause of PSP remains unknown, and it is estimated that approximately 4,000 individuals in the UK live with the condition. As seen in our mother’s case, PSP is often misdiagnosed and confused with Parkinson's or frontotemporal dementia, making this research programme all the more essential.

With support like yours, we hope that in Mum's memory, we can contribute to helping future PSP sufferers and one day find a cure.

With love and thanks for your support.

Jemma, Stephen & Amy x