Supporting the next generation of adults living with Duchenne

Mark Silverman is raising money for Action Duchenne
Celebrating the birthday of Warren’s 80th birthday
£1,324
raised of £1,000 target
Donations cannot currently be made to this page
Funding support projects to help young people living with Duchenne muscular dystrophy as they transition to adult life.

Story

Thank you for helping me to support the life-changing work of Action Duchenne, a charity which supports my grandson Thomas and many other people who are living with Duchenne Muscular Dystrophy.

Your donation will help fund projects which will empower young people living with the rare muscle-wasting condition.

Duchenne Muscular Dystrophy is a rare genetic condition caused by mutations in the dystrophin gene, which makes muscles more susceptible to damage and leads to muscle wasting over time. People living with Duchenne muscular dystrophy experience progressive muscle weakness and typically need to use a powered wheelchair from their early teens. The heart and breathing muscles are eventually affected and most will require a ventilator in their twenties; life expectancy is around 30 years but has improved with palliative care developments.

There is no cure.

Thank you for your donation to help power Action Duchenne's vital work.

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Donation summary

Total
£1,324.00
+ £281.00 Gift Aid
Online
£1,274.00
Offline
£50.00

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