Florence’s fundraiser for Follow Fearne and Just4Children

Wirral Coastal Walk · 11 June 2023
Florence has decided to join our friends in a sponsored walk to raise money for her little sister Fearne.
Florence will walk the final 3 miles of the Wirral Coastal Walk.
Through Whole Genome Sequencing (WGS) Fearne has very recently received a diagnosis of a neurodevelopment disorder caused by a variation to gene GABBR2. Because of this she has significant Global Development Delay, low muscle tone and vision impairment all of which bring their own complications.
Fearne is supported by NHS physio, occupational and speech and language therapists and also local authority vision support. We are incredibly grateful for this help but feel that in order for Fearne to achieve her potential she needs more regular and varied therapy.
As a family we are hoping to help Just4Children raise funds to access pioneering therapies and help her be all she can be.
Fearne is such a happy little girl and has the most amazing bond with her sister. Florence is the most wonderful big sister Fearne could have dreamed of and makes us so proud.
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