Vincent's fundraiser for Tree of Hope
Fundraising for Tree of Hope
Fundraising for Tree of Hope
Thanks for taking the time to visit my JustGiving page.
StoryMaximus Gym have put together a team of 200 PEOPLE (!!) to take part in TOUGH MUDDER this September to fundraise for The Johnston Twins. Our team consists of a huge variety of age and ability and we can't wait to conquer the course.
6 year old Matthew and Lucy both have cerebral palsy and are on the road to walking, following their life changing SDR operations.
Even after surgery, the twins require intense and sustainable therapy to make it all worthwhile. This comes with a cost of £50k per year with the hope that both kids will be able to live independently with the freedom of walking, and most importantly pain free.
About Matthew and Lucy: Life with cerebral palsy, dystonia and ASD makes life a little different but The Johnston Twins - Matthew and Lucy, will never fail to spread sunshine to everyone they meet. They say you can't put a price on a child's quality of life, but they do - and it's steep! The NHS won’t fund their requirements because it’s not guaranteed to work, so we fundraised for them to have their SDR operations and there is truly no stopping them now.Unfortunately even after the surgeries, the twins require intense therapy including physio, speech, occupational and hydro to make it all worth while. Putting 100% into everything they are asked to do has become the norm for Matthew and Lucy - but to make this all worthwhile, this has to be sustained at a cost of £50k per year.
Matthew is hilarious and has really come into his own following his SDR surgery in 2020, gaining a little bit more of the freedom he deserves. It’s hard to imagine a 6 year old having to do weight training just to be able to enjoy the freedom of walking. Despite being told Matthew would be wheelchair bound for life, he is now taking independent steps where safe to do so, is confident walking with his frame, and now only needs his wheelchair when his legs get a little tired. Lucy had her surgery just last year and despite doctors saying she would never be able to speak, sit up on her own, or control her own body - she is now the chattiest person, is on the road to being able to walk with her frame, and is getting more and more independent as days go by. Although she is in a lot less pain, her physio regime is tough - but she always does it with the biggest smile on her face. Lucy is the happiest child around, her laugh is infectious, and she makes everyone she meets smile.
We just want to give her an opportunity to live her life to the absolute fullest and make that smile a little bit bigger! through.
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