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Vern Klassen

Funding Research & Hope for MED13L Syndrome

Fundraising for Med13L Foundation
0%
US$104
raised of US$15,000 target
by 4 supporters
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Med13L Conference, 11 July 2025
1 Million for MED13L
Campaign by Med13L Foundation (RCN 822469441)
The MED13L Foundation have launched a fundraising campaign to raise $1 million towards developing therapies. MED13L is a recently identified single-gene disorder that is a leading cause of autism and intellectual disability.

Story

The MED13L Foundation is a beacon of hope, ignited by the unwavering passion of families touched by MED13L Syndrome. Our mission is to create a brighter future for all those living with MED13L through the power of research, the strength of community, and the spirit of collaboration. Together, we are forging a path towards greater understanding and support, bringing light to the lives of families facing this rare genetic disorder.

Since our daughter, Caitlynn, was born we have been searching for answers to her condition.(the list of side effects are as long as my arm). We received great news in the fall of 2023, a diagnosis of Med13L. This brings us to a new chapter in our story. A potential for more treatment options in the future.

Please donate today to help fund the summer of 2025 conference. This will help families from All over North America connect, generate collaborative scenarios and most importantly generate opportunities for treatment in the future!

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About the campaign

The MED13L Foundation have launched a fundraising campaign to raise $1 million towards developing therapies. MED13L is a recently identified single-gene disorder that is a leading cause of autism and intellectual disability.

About the charity

The MED13L Foundation coordinates and collaborates with the global scientific community to understand the function of the MED13L gene in order to develop effective treatments and a cure for MED13L syndrome. The Foundation also provides educational and emotional support for those affected by MED13L.
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Donation summary

Total raised
US$103.43
Online donations
US$103.43
Offline donations
US$0.00

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