Story
My amazing twin sister Georgie was diagnosed with a grade four glioblastoma IDH wild type brain tumour (the one you really don’t want) last May.
The strength and positivity with which she is tackling this enormous challenge is astounding and inspiring. She’s still working, and hard! She’s also going to every possible one of her kids’ sports matches. And as a fierce supporter of sport and particularly women in sport, she also some how finds the time to support them (the Lionesses, the Matildas, Andy Murray, Arsenal, Cronulla Sharks!)
It’s also heartbreaking, particularly knowing the impact on Gary and their five wonderful kids, Jay, Jimmy, Pops, Ned & Zinnie. The outlook is bleak and while some of the treatment is amazing (5hr awake surgery) some can also feel rather barbaric. That wouldn’t matter if it worked but it only increases life expectancy from a few months to an average of 15 months. Obviously every second of every hour is a gift but it’s hard when the treatments are fairly brutal. What is surprising here is that the treatment plan hasn’t changed for 20 years! It is underfunded and desperately in need of some new ideas.
However there are glimmers of hope out there and some wonderful researchers, professors and doctors are coming up with new ideas. Some of these treatments are seriously expensive, most of them we have no idea if they work / will help. What is needed in this arena is more awareness and crucially more funding for more research.
Georgie and our families and friends are taking part in the London Twilight Walk on the 23rd March to help do this for all those future diagnosis that we hope we can help. So please spread the word. Lets shake things up in the brain tumour sector, the biggest cancer killer of children and adults under 40 and start changing the status quo.
Share here… Donate here… Lets change the outlook to one of HOPE!