Our Story

Earlier this year, Tom’s mum Rose was diagnosed with motor neurone disease (MND) - a fatal, rapidly progressing disease that affects the brain and spinal cord.

This news has turned our world upside down, but has also brought out the very best in our family. We’re in awe of Rose, who continues to make us laugh every day.

Out of love and a determination to do something constructive, Tom and Sam are running the Royal Parks Half Marathon in aid of the MND Association. 

This remarkable organisation is funding research to find tomorrow’s treatments and cures, while supporting patients and families like ours in the present. There’s more on their work below. 

Today we’re asking you to please dig deep and give as much as you can to support us. Together we’ll change and save lives affected by this cruel disease. 

About MND and the Association

Motor neurone disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.

MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order.

Although there is currently no cure for MND, symptoms can be managed to help you achieve the best possible quality of life.

We need your support.

£120 could provide an overbed table, making it easier for someone with MND to eat, drink and read safely and comfortably in bed

£280 could fund the coordination of care for someone with MND at a Care Centre for a year

£500 could provide a tablet device with specialist communication software, allowing someone to communicate with loved ones