Tom Parkinson
Tom, Joe, James and Callum's fundraiser for CF Warriors.
Fundraising for CF Warriors
Story
We are running the Yorkshire marathon in October for CF warrriors.
Our friends son, and Callums nephew, Oscar was born in October 2022, and shortly afterwards was diagnosed with Cystic Fibrosis.
Cystic fibrosis is a genetic life limiting disease that is caused by a defective CFTR protein. The gene affected by CF controls the movement of salt and water in and out of cells. People with CF experience a build-up of thick sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body.
Treatment for cf is preventative rather then curative. Oscar takes a complex cocktail of medications 13 times a day. (Not including antibiotics if he gets abit ill) he also has physio every day that helps move the sticky mucus and bacteria from his airways.
As a group, we have decided to to challenge and push ourselves to take part in the yorkshire marathon ( First marathon for all of us!) to raise money and awareness for a charity that works closely with helping children and young people with CF like Oscar.
With help from Oscars mum, we have found CF Warriors, a charity that helps inspire young people with CF to live actively, with a mission that is:
Our mission is to raise awareness of the importance of sport & exercise to every member of the CF community
With that mission, their vision is:
CF Warriors was founded by Josh Llewellyn-Jones and his brother Mark. Josh was diagnosed with cystic fibrosis at birth and at the age of 2, was fortunate enough to meet Dr Bob Kramer from Dallas, Texas. His advice to Josh's parents was to 'run his legs off' and exercise always needed to play a big part in Josh's life to keep him fit and healthy. Nearly 30 years on and Josh is as fit as he's ever been. Passionate about helping children with cystic fibrosis, Josh and Mark set up CF Warriors to motivate, inspire and support children on their journey to a longer, happier and healthier life.
CF warriors colloborate and work closely with the university of Portsmouth University’s School of Sport, Health and Exercise Science with research into projects around the benefit of keeping active with CF.
you can find out more on the link below,
https://www.cfwarriors.org.uk/about/our-mission/
Any donations will be much appreicated for a cause close to all of us.
Tom, Joe, Callum and James.