tom austin

London to Paris Cycle for UNIQUE (Rare Chromosome Disorder Support Group)

Fundraising for UNIQUE (Rare Chromosome Disorder Support Group)
£1,181
raised of £800 target
Donations cannot currently be made to this page
Leading a group ride from London to Paris to raise money for Unique, 13 July 2023
We Provide support and information to improve the care of those affected

Story

Shortly after his birth, my beautiful nephew Beau was diagnosed with a rare chromosome disorder, 15q duplication syndrome. Being so young, it is difficult to know what the long-term effects of his diagnosis will be on both his and his family's life. That uncertainty is difficult to manage and takes a toll on any family going through a similar journey. That's why I am helping to raise money for Unique, a brilliant charity that looks to help families manage a rare chromosome or single gene disorder. Any help would be much appreciated by Beau, his family and all the other families throughout the UK caring for their little ones.

I will be leading a group of fifteen riders setting off from Bond Street to Avenue Montaigne in Paris over three days. Here's hoping for good weather, smiles for miles and quiet roads.

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About the charity

Unique provides much needed help and information to those caring for a family member with a rare chromosome or single gene disorder. These are lifelong conditions affecting at least 1 in 200 babies, causing disability and medical issues. For more information see www.rarechromo.org

Donation summary

Total raised
£1,180.58
+ £263.75 Gift Aid
Online donations
£1,180.58
Offline donations
£0.00

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