My 16 month old grandson was unfortunately diagnosed with a very rare form of degenerative muscular dystrophy, called Muscle - Eye - Brain (MEB) disease.

He is such a happy and lovely baby and it is so sad to know his future will be very challenging. Hopefully one day children will not have to go through what my Grandson is facing.

To help raise funds for Muscular Dystrophy, I am going to undertake a very long bike ride, called Chase the Sun, which is 210 miles in a day. I have been training with a group of supportive friends, for the last 6 months, with several 100+ mile tough all day rides!

Muscular Dystrophy UK is the charity for 111,000 people living with muscle-wasting conditions. They are making a difference today, providing vital information and support to help people live as independently as possible. They are making a difference for tomorrow, accelerating progress in research and driving the campaign for access to emerging treatments.

Anything you can contribute will be greatly appreciated and help motivate us, when the legs feel too heavy to carry on.