On Saturday 14th June 2025, Ross, Mike, Kyle, Paul, Cammy & James will be teaming up to participate in the Scurry2bridges 100 mile run. We will set off from Riverside Park in Dundee and finish in Silverknowes in Edinburgh, running via the Fife Coastal Path.

We are taking part in the Scurry2Bridges inspired by Lily, a little girl from Cupar who was diagnosed with Rett syndrome at the end of 2023. Lily was born healthy and developed normally for the first year of her life but at around 14 months began regressing in skills including the ability to use her hands. She has since developed other symptoms such as abnormal breathing patterns.

Rett syndrome is a rare neurological condition and most individuals with the condition are unable to speak, walk, or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal, and orthopaedic issues are common. Most people with Rett syndrome are severely disabled and will need round the clock care for life.

Research has shown that people with Rett Syndrome do not have brain damage. They know and understand much more than their bodies allow them to show – but they are locked in, trapped by a body that cannot obey signals from their brain.

The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway which gives great hope for girls like Lily.

Much is required of Reverse Rett, who are packing a mighty punch in accelerating disease-modifying treatments for Rett syndrome but we need your support to keep this work going. The charity also funds a specialist clinic to help patients stay as healthy as possible until treatments become available.

Thank you for your support and any donations are very much appreciated.