It will be 5 years this year that we lost Dad/Granddad to MND, and not a day goes by that we don't miss him in our lives. With Rob Burrow sadly losing his battle on 2 June 2024, after a few year's hiatus, we have been inspired to get back on the fundraising wagon, to help continue his legacy of trying to find a cure for this cruellest of illnesses.

Sam's doing the Rob Burrow Leeds marathon again in 2025, but first up is nine-year-old Lyla's 7 in 7 challenge - what a star!

Motor neurone disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.

MND can affect how you walk, talk, eat, drink and breathe. Although there is currently no cure for MND, symptoms can be managed to help you achieve the best possible quality of life.

£160 could fund a specialist communication app for a tablet/smartphone/laptop to enable a person with MND to continue to communicate with loved ones

£280 could fund the co-ordination of care for a person with MND at a care centre for a year

£1000 could pay for detailed analysis of the DNA of someone with MND to help us better understand the causes of the disease.

Please support us by giving what you can. For us, there is no finish line until there's a cure.