It’s been almost 2 years since we did our epic cycle from Paris home, and quite honestly I was finding it hard to do something that could beat the success of that challenge, but I think I might have found the one!

On June 20th 2026, Myself and Sharmila, mum to Sohanna also with EB, will be climbing the 9570ft Mount Olympus in Greece along with 27 of the most amazing and supportive people you will ever meet. Who, when I say ‘shall we do this for Cure EB?’, the answer is always unequivically yes! They are a combination of friends, family and friends of friends who, once they knew about the condition, just wanted to help. And this year we have roped in a few newbies to Team EB!

So why is this so important? Well it might be 2 years later but for Poppy, my daughter who suffers with RDEB (Recessive Dystrophic Epidermolysis Bullosa), life has got so much harder. Now a teenager, she is facing the most challenging part of her life to date. EB has really taken its toll on her. Dressing changes now take 5 hours a day. She is always in pain, dampened down by so much medication that she simply can’t get through the day without. Her mobility continues to decline and she spends more time in her wheelchair than not these days.

Fusing of her fingers has accelerated and it feels like we are swimming against the tide to keep the use of her hands. Her peers are growing into young adults with independence that she so desperately craves too, but this condition keeps her held back. Always needing a carer, never alone just to be. It’s devastating as a parent to witness and feel so helpless.

As part of our continued fundraising efforts for Cure EB, we are aiming to raise £50,000 to support vital research initiatives that can change the lives of people living with EB. Your support can make a significant difference. Together, we want to climb towards a future where EB no longer exists.

The majority of our team are not experienced climbers and although looking forward to the challenge, are incredibly nervous about what’s ahead! What we are all certain about is that whatever we face on this climb will not compare to what a child with EB goes through everyday.

Cure EB exist to find and fund research into treatments and, ultimately, a cure for Epidermolysis Bullosa, an incurable, progressive, debilitating and very painful genetic skin condition which causes internal and external blisters at the slightest friction. In its most serious form, it causes wounds that are like having very severe burns, eventually leading to skin cancer.

Through funding and collaboration, Cure EB strive for treatments that provide symptomatic relief, quality of life change, and ultimately, a cure for all types of EB.